So it's been a while since I checked in. Last time I was experiencing a major flare-up which turned out to be a combination of neurosarcoidosis and rheumatoid arthritis. Very, very painful and life threatening. After being told that there was really nothing that can be done for me anymore except to keep me comfortable,…
(This is an experience that I thought I share that happened to me last night.) 12/9/2019 Depression is very scary and the most important thing to do, if you feel that this is you, is to seek professional help immediately. Here, as I do everyday, alone. Sometimes I feel like I'm wasting away with no…
http://tpc.googlesyndication.com/safeframe/1-0-15/html/container.html NORD: The Voice of the Community - February 2018 FEBRUARY 20, 2018 News from NORD and its Member Organizations – February 2018 Find Out What’s Happening in Your State for Rare Disease Day On February 28th, people around the world will observe Rare Disease Day. To find out what’s happening around the U.S. and…
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