Do You Really Care?

For those who think that it is warranted for Warrior's to "fake the funk" so that WE don't offend others with our symptoms. For those who think that we should smile and hide our pains. For those who say they love us and care about what we are going through. For those who say,, "you…

It’s Rare Disease Day 2021

Good day to you all. I hope that everyone is safe, happy and living each day to the fullest. Today is Rare Disease Day 2021 and I am, along with thousands of others like me, trying to bring awareness to to the many, many Rare Diseases out there with no cure. Many like myself, are…

My niece completed her task ^.^

My niece made a promise to herself and fulfilled it without letting anyone know of her journey. I'm am so proud of her that I am so overwhelmed with emotions. Our family has been through some really tough times over the last few months.  First with the loss of my big sister Dinah Murphy. Next my mother Nola become…