Purple Rose of Sarcoidosis

Well hello everyone. I have been battling Sarcoidosis for 13 years. It started in my lungs and eventually affected my skin, eyes (surgery removed large granulomas over both eyelids and under right eye), sinus (3 surgeries resulting in no sense of smell or taste since 2006), kidneys, liver, lymph nodes and now bones including joints. Very, very painful but I won’t complain. I don’t have to tell you guys. I am on 24 hr oxygen (3 liters) and also sleep with BiPap w/oxygen but I won’t complain. I was also diagnosed with Fibromyalgia in 2009 which exacerbates my pain, but I won’t complain. My Rheumatologist asked that I seek a 2nd opinion because he was afraid he was missing something. Well I did and that is how the Sarcoidosis of my bones was diagnosed. During these years I have had Doctor’s quit on me because they were, more than often, drawn to tears whilst treating me. I have lost both my parents and two sisters, but i won’t complain. I am seeking a new route of treatment now via Functional and Holistic Medicine. Tried Holistic before but funding out of pocket and being on Medicare, it’s not covered. Still not complaining. So, how is your day?…

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s